Mark Perez Coiras
Disclaimer: I have been crazy busy with a frenzy of activities and have not been able to capture, in writing, the many amazing and not so amazing life events that motivate me to pen moments. I commit to catch up soon.
These last few months have been about hugs, gratitude and the feel of being finely favored. Armando's 8th grade Graduation was a source of teary smiles and giggles, planning to publish on Amazon, a concert tour, family moments and sadly the passing of Bella! Trying to Live Like Bella! So many daily miracles to marvel at and get lost in...
Today, I would like to extend an opportunity to help a wonderful, soulful young boy and his family. Although, not personally known to me, his aunt is a long time colleague, Ana Maria Martin-Osle. I have compassionately followed his journey for the last two years.
If you click on the link below you will find yourself on a page that enables you to assist the family financially. If you are not able to offer a stipend, please include them in your heartfelt prayers.
About Mark's Miracles was created to raise funds for all the direct and indirect medical expenses incurred from his battle with Chronic Idiopathic Intracranial Hypertension (IIH), fibromyalgia, and chronic migraine syndrome. His family will also need to travel to a clinic in Ohio that has a Pediatric Pseudotumor Cerebri Clinic.
Mark's Story:
"Mark has spent the last 30 months of his life fighting against chronic illness. His battle began on January 1, 2011 when he was diagnosed with an autoimmune vasculitis. That slowly erupted into a nightmare when he began having headaches and losing vision. In March 2011, he had nearly gone blind to Grade 4 Papilledema. Bascom Palmer Eye Institute by the grace of God was able to save his vision although he struggles with daily vision changes. He was diagnosed thereafter with a rare disease called Idiopathic Intracranial Hypertension, also known as pseudotumor cerebri. The disease causes increased cerebral spinal fluid applying immense pressure around his brain causing excruciating pain. He has had more than a dozen hospitalizations and lumbar punctures to relieve pressure to no avail. He has since been diagnosed with severe Fibromyalgia, Atypical Chronic Idiopathic Intracranial Hypertension and Chronic Migraine Symptom all of which cause pain. Additionally, his kidneys are starting to feel the consequences of his disease. He is in constant pain, takes 12 prescriptions a day and suffers physically and emotionally. Yet he always manages a smile that touches your heart.
In spite of it all, he is an intelligent 5th grader who excels in all he sets into motion. His unique antics and wittiness keep us laughing and smiling every day. He is humble and incredibly faithful and an example to us all. He adores his sister who idolizes him. So we continue to pray for a cure, pray for some relief, and pray that he can live a long healthy life."
God bless you all and more importantly give prayers to Mark and his family.
Strength for the journey! Buen Camino!
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